Yesterday I had a bad situation: My pain level was at 12, insurance ended the day before, and I was in no financial situation to see a doctor. I debated going to Urgent Care, the least expensive option. The other part was I was eligible for COBRA but haven't had any information to activate it.
So what is a spoonie to do? I chose to sleep as long as I could. Once my parents got home, if my pain level was still above 10, I would be taken to Urgent Care. Thankfully, the pain lowered to a range of 5-7 which is manageable for me. How sad is that?
If a completely normal, healthy person borrowed my body for a day, they'd think they were dying. My body is used to constant pain so I only react to the top pain levels. As I'm typing, I'm at a 4. Stiff back of the neck and mild headache. This is my daily battle.
My next thought was disability. I feel like I'm not worthy of it since I'm able to walk and have good days. However, I cannot work a full time job anymore. How will I support myself if I can't work like a normal person? So the long process begins. Will I be approved? I'm not sure, but I've got to try.
Any spoonies have days like me? How do you cope?
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